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25 mai 2018 Josselin Thuilliez A booster bite for mosquito nets? Evidence from a randomized experiment

22 juin 2018 à préciser Journée Scientifique conjointe de l'unité SPHERE et de l'unité ECEVE

Last publications

15 mai 2018 Nadal M, Levy M, Bakhsh A, Joly A, Maruani A, Vaillant L, Erra B, Samimi M (2018) Salivary scintigraphy for Sjögren's syndrome in patients with xerostomia: A retrospective study. Oral Dis, 24(4): 552-60.

02 mai 2018 Le Cornec C, Lariby S, Brenckmann V, Hardouin JB, Ecoffey C, Le pottier M, Fraddin P, Broch H, Kabbaj A, Auffret Y, Deciron F, Longo C, Javaudin F, Le Bastard O, Jenvrin J, Montassier E (2018) Is intravenously administered, subdissociative-dose KETAmine non-inferior to MORPHine for prehospital analgesia (the KETAMORPH study): study protocol for a randomized controlled trial. Trials, 19(1): 260.

15 avril 2018 Moawad S, Mahé E, Aubert- Wastiaux H, Phan A, Maruani A, Chiaverini C, Bodemer C, Mazereeuw-Hautier J, Lasek-Duriez A, Droitcourt C, Barbarot S, Beauchet A, Bursztejn A, Groupe de Recherche de la Société Française de Dermatologie Pédiatrique (2018) Topical Corticosteroid Concerns Among Parents of Children with Psoriasis versus Atopic Dermatitis: A French Multicenter Cross-Sectional Study. Am J Clin Dermatol, 19(2): 261-5.

15 avril 2018 Morel A, Hardouin JB, Pottier P (2018) Interpersonal Skills Among Fourth- and Fifth-Year Medical Students: Validation of an Assessment Tool. Simul Healthc, 13(2): 88-95.

15 avril 2018 Lilli N, Quénéhervé L, Haddara S, Brochard C, Aubert P, Rolli-Derkinderen M, Durand T, Naveilhan P, Hardouin JB, De Giorgio R, Barbara G, Bruley des Varannes S, Coron E, Neunlist M (2018) Glioplasticity in irritable bowel syndrome. Neurogastroenterol Motil, 30(4): e13232.

Updated

16 mai 2018

The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.

Auteurs

Dany Antoine
Rapin Amandine
Lavallart B
Saoüt V
Reveillère Christian
Bassez G
Tiffreau Vincent
Péréon Yves
Sacconi Sabrina
Eymard B
Dramé M
Jolly Damien
Novella Jean-Luc
Hardouin Jean-Benoit - Maitre de Conférences - HDR - Biostatistique - UFR de Pharmacie
Boyer François

Description

Nature : Articles dans une revue internationale
Thématique : Biostatistique et Mesures Subjectives en Santé
Rang : Rang B : publication porté par une autre équipe, mais entrant dans les thématiques de l'équipe avec un apport spécifique
Axe de recherche principal: Validation d'échelles

Dany A, Rapin A, Lavallart B, Saoüt V, Reveillère C, Bassez G, Tiffreau V, Péréon Y, Sacconi S, Eymard B, Dramé M, Jolly D, Novella JL, Hardouin JB, Boyer F (2017) The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.. Muscle Nerve, 56(6): 1085-1091.

Abstract

Introduction: Slowly progressive, genetic neuromuscular diseases (gNMDs) often lead to important motor deficiencies and functional limitations. The Quality of Life in Genetic Neuromuscular Disease Questionnaire (QoL-gNMD) is a new health-related quality-of-life questionnaire developed for these patients. The purpose of the present study was to validate the French version of the QoL-gNMD and to calibrate its measurement system.

Methods: Both the QoL-gNMD and a validated generic questionnaire (WHOQOL-BREF) were administered to patients. Validation was performed using item response theory. The partial credit model (Rasch) was used to calibrate each domain.

Results: Three hundred fifteen adult patients were included. All 3 domains showed adequate psychometric properties (internal consistency: person separation index >0.77; repeatability: test-retest intraclass correlation coefficient >0.75, scalability coefficient >0.38) and fitted the partial credit model. The QoL-gNMD also demonstrated adequate concurrent validity with the WHOQOL-BREF.

Conclusion: The QoL-gNMD showed adequate psychometric properties and can be used in clinical settings. Although not anchor-based, the minimum detectable change tables help in interpreting score change.

Projet(s) ayant donné lieu à cette publication

QOL-NMD : Evaluation de la qualité de vie des personnes atteintes de maladies neuromusculaires : construction et validation d'une échelle

Publications ayant le même axe principal de recherche (Validation d'échelles)

Perrot B, Anthoine E, Hardouin JB (2018) Validscale : A Stata module to validate measurement scales. Stata Journal, 18(1): 29-50.
Barais M, Laporte C, Schuers M, Saint-Lary O, Frappé P, Dibao-Dina C, Darmaun D, Bouchez T, Gelly J (2017) Cross-sectional multicentre study on the cohort of all the French junior lecturers in general practice. Eur J Gen Pract, 24(1): 99-105.
Baayen C, Feuillet F, Clermidi P, Crétolle C, Sarnacki S, Podevin G, Hardouin JB (2017) Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults. Health and Quality of Life Outcomes, 15: 24.
Boutoleau-Bretonnière C, Evrard C, Hardouin JB, Rocher L, Charriau T, Etcharry-Bouyx F, Auriacombe M, Richard-Mornas A, Lebert F, Pasquier F, Sauvaget A, Bulteau S, Vercelletto M, Derkinderen P, Boutoleau-Bretonnière C, Thomas R (2015) DAPHNE: a new tool for diagnosis of behavioral variant of frontototemporal dementia. Dement Geriatr Cogn Dis Extra, 5(3): 503-516.
Dany A, Barbe C, Morrone I, Wolak A, Reveillère C, Hardouin JB, Dramé M, Sacconi S, Bassez G, Tiffreau V, Richard I, Gallais B, Jolly D, Novella JL, Boyer F (2015) Construction of a Quality of Life Questionnaire for Slowly Progressive Neuromuscular Disease. Quality of Life Research, 14(11): 2615–2623 .
Blanchin M, Dauchy S, Cano A, Brédart A, Aaronson N, Hardouin JB (2015) Validation of the French translation-adaptation of the Impact of Cancer version 2 (IOCv2) questionnaire on a breast cancer survivors population. Health and Quality of Life Outcomes, 13: 110.
Panouillères M, Anota A, Nguyen T, Brédart A, Bosset J, Monnier A, Mercier M, Hardouin JB (2014) Evaluation properties of the French version of the OUT-PATSAT35 satisfaction with care questionnaire according to classical and item response theory analyses. Quality of life Research, 23(7): 2089-2101.
Anthoine E, Coutherut J, Delmas C, Moret L (2014) Development and psychometric testing of a scale assessing the sharing of medical information and interprofessional communication: the CSI scale. BMC Health Service Research, 13: 14:126.
Moret L, Anthoine E, Aubert- Wastiaux H, Le Rhun M, Leux C, Mazereeuw-Hautier J, Stalder J, Barbarot S (2013) TOPICOP©: a new scale evaluating topical corticosteroid phobia among atopic dermatitis outpatients and their parents.. PLoS One, 8(10): e76493.
Clermidi P, Podevin G, Crétolle C, Sarnacki S, Hardouin JB (2013) The challenge of measuring quality of life for children with Hirschsprung's diseases or anorectal malformations. Journal of Pediatric Surgery, 48(10): 2118-2127.

Publications liées à l'axe principal de recherche (Validation d'échelles)