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The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.

Auteurs

• Dany Antoine
  
  
• Rapin Amandine
  
  
• Lavallart B
  
  
• Saoüt V
  
  
• Reveillère Christian
  
  
• Bassez G
  
  
• Tiffreau Vincent
  
  
• Péréon Yves
  
  
• Sacconi Sabrina
  
  
• Eymard B
  
  
• Dramé M
  
  
• Jolly Damien
  
  
• Novella Jean-Luc
  
  
• Hardouin Jean-Benoit - Maitre de Conférences - HDR - Biostatistique  - UFR de Pharmacie 
  
  
• Boyer François
  
  

Description

Nature : Articles dans une revue internationale
Thématique : Biostatistique et Mesures Subjectives en Santé
Rang : Rang B : publication porté par une autre équipe, mais entrant dans les thématiques de l'équipe avec un apport spécifique
Axe de recherche principal: Validation d'échelles

Dany A, Rapin A, Lavallart B, Saoüt V, Reveillère C, Bassez G, Tiffreau V, Péréon Y, Sacconi S, Eymard B, Dramé M, Jolly D, Novella JL, Hardouin JB, Boyer F (2017) The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.. Muscle Nerve, 56(6): 1085-1091.

Abstract

Introduction: Slowly progressive, genetic neuromuscular diseases (gNMDs) often lead to important motor deficiencies and functional limitations. The Quality of Life in Genetic Neuromuscular Disease Questionnaire (QoL-gNMD) is a new health-related quality-of-life questionnaire developed for these patients. The purpose of the present study was to validate the French version of the QoL-gNMD and to calibrate its measurement system.

Projet(s) ayant donné lieu à cette publication

QOL-NMD : Evaluation de la qualité de vie des personnes atteintes de maladies neuromusculaires : construction et validation d'une échelle

Publications ayant le même axe principal de recherche (Validation d'échelles)

• Perrot B, Anthoine E, Hardouin JB (2018) Validscale : A Stata module to validate measurement scales. Stata Journal, 18(1): 29-50.
  
  
• Barais M, Laporte C, Schuers M, Saint-Lary O, Frappé P, Dibao-Dina C, Darmaun D, Bouchez T, Gelly J (2017) Cross-sectional multicentre study on the cohort of all the French junior lecturers in general practice. Eur J Gen Pract, 24(1): 99-105.
  
  
• Fossum P, Le Meur G, Couret C, Pechereau A, Hode F, Albert F, Anthoine E, Lebranchu P (2017) Validation of the French version of the health-related quality of life questionnaire for adult strabismus (AS-20). J Fr Ophtalmol, 40(9): 738-743.
  
  
• Baayen C, Feuillet F, Clermidi P, Crétolle C, Sarnacki S, Podevin G, Hardouin JB (2017) Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults. Health and Quality of Life Outcomes, 15: 24.
  
  
• Boutoleau-Bretonnière C, Evrard C, Hardouin JB, Rocher L, Charriau T, Etcharry-Bouyx F, Auriacombe M, Richard-Mornas A, Lebert F, Pasquier F, Sauvaget A, Bulteau S, Vercelletto M, Derkinderen P, Boutoleau-Bretonnière C, Thomas R (2015) DAPHNE: a new tool for diagnosis of behavioral variant of frontototemporal dementia. Dement Geriatr Cogn Dis Extra, 5(3): 503-516.
  
  
• Dany A, Barbe C, Morrone I, Wolak A, Reveillère C, Hardouin JB, Dramé M, Sacconi S, Bassez G, Tiffreau V, Richard I, Gallais B, Jolly D, Novella JL, Boyer F (2015) Construction of a Quality of Life Questionnaire for Slowly Progressive Neuromuscular Disease. Quality of Life Research, 24(11): 2615–2623 .
  
  
• Blanchin M, Dauchy S, Cano A, Brédart A, Aaronson N, Hardouin JB (2015) Validation of the French translation-adaptation of the Impact of Cancer version 2 (IOCv2) questionnaire on a breast cancer survivors population. Health and Quality of Life Outcomes, 13: 110.
  
  
• Panouillères M, Anota A, Nguyen T, Brédart A, Bosset J, Monnier A, Mercier M, Hardouin JB (2014) Evaluation properties of the French version of the OUT-PATSAT35 satisfaction with care questionnaire according to classical and item response theory analyses. Quality of life Research, 23(7): 2089-2101.
  
  
• Anthoine E, Coutherut J, Delmas C, Moret L (2014) Development and psychometric testing of a scale assessing the sharing of medical information and interprofessional communication: the CSI scale. BMC Health Service Research, 13: 14:126.
  
  
• Moret L, Anthoine E, Aubert- Wastiaux H, Le Rhun M, Leux C, Mazereeuw-Hautier J, Stalder J, Barbarot S (2013) TOPICOP©: a new scale evaluating topical corticosteroid phobia among atopic dermatitis outpatients and their parents.. PLoS One, 8(10): e76493.
  
  
• Clermidi P, Podevin G, Crétolle C, Sarnacki S, Hardouin JB (2013) The challenge of measuring quality of life for children with Hirschsprung's diseases or anorectal malformations. Journal of Pediatric Surgery, 48(10): 2118-2127.
  
  

Publications liées à l'axe principal de recherche (Validation d'échelles)

• Challet G, Hardouin JB, Boutin C, Gorwood P, Le Bourvellec JD, Feuillet F, Vénisse JL, Grall-Bronnec M (2014) A shorter and multidimensional version of the Gambling Attitudes and Beliefs and Survey (GABS-23). Journal of Gambling Studies , 30(2): 349-367.
  
  
• Grall-Bronnec M, Challet G, Sébille V, Gorwood P, Boutin C, Vénisse JL, Hardouin JB (2012) A French adaptation of the Gambling Related Cognitions Scale (GRCS): A useful tool for assessment of irrational thoughts among gamblers. Journal of Gambling Issues, 27: 1-21.
  
  
• Hardouin JB, Mesbah M (2008) Selection of items fitting a Rasch model. In Mathematical methods for survival analysis, reliability and Quality of life (Eds Huber C., Limnios N., Mesbah M., Nikulin M.): Hermes: Paris. Chapter 17: 255-274..
  
  
• Hardouin JB (2005) Construction d'échelles d'items unidimensionnelles en qualité de vie. Thèse de doctorat de l'Université René Descartes - Paris 5, 201.
  
  
• Hardouin JB, Mesbah M (2004) Clustering Binary Variables in Subscales using an Extended Rasch model and Akaike Information Criterion. Communication in Statistics – Theory and Methods, 33(6): 1277-1294.