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30 avril 2019 Nathalie Pelletier-Fleury (DR Inserm, Centre de recherche en Epidémiologie et Santé des Populations, UMR 1018) La surmédicalisation dans la maladie d'Alzheimer.

23 mai 2019 Florian Naudet Obtenir l'AMM pour les nuls. Chapitre 1, les méta-analyses

Last publications

09 avril 2019 Rouquette A, Hardouin JB, Vanhaesebrouck A, Sébille V, Coste J (2019) Differential Item Functioning (DIF) in composite health measurement scale: recommendations for characterizing DIF with meaningful consequences within the Rasch model framework.. PLOS One, 14(4): e0215073.

15 mars 2019 Quénéhervé L, David G, Bourreille , Hardouin JB, Rahmi G, Neunlist M, Brégeon J, Coron E (2019) Quantitative assessment of mucosal architecture using computer-based analysis of confocal laser endomicroscopy in inflammatory bowel diseases. Gastrointestinal Endoscopy, 89(3): 626-636.

07 mars 2019 Prudhomme T, Dajean-Trutaud S, Rousselet M, Feuillet F, Carpentier-Cheraud M, Bonnot O, Hyon I, Grall-Bronnec M, Lopez-Cazaux S, Victorri-Vigneau C (2019) The MEOPAeDent trial protocol—an observational study of the Equimolar Mixture of Oxygen and Nitrous Oxide (EMONO) effects in paediatric dentistry. BMC Oral Health, 19: 42.

01 mars 2019 Leducq S, Giraudeau B, Tavernier E, Maruani A (2019) Topical use of mammalian target of rapamycin inhibitors in dermatology: A systematic review with meta-analysis. J Am Acad Dermatol, 80(3): 735-42.

01 mars 2019 Fournier MC, Foucher Y, Blanche P, Legendre C, Girerd S, Ladrière M, Morelon E, Buron F, Rostaing L, Kamar N, Mourad G, Garrigue V, Couvrat-Desvergnes G, Giral M, Dantan E (2019) Dynamic predictions of long-term kidney graft failure: an information tool promoting patient-centred care.. Nephrology Dialysis Transplantation: .

Updated

15 avril 2019

The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.

Auteurs

Dany Antoine
Rapin Amandine
Lavallart B
Saoüt V
Reveillère Christian
Bassez G
Tiffreau Vincent
Péréon Yves
Sacconi Sabrina
Eymard B
Dramé M
Jolly Damien
Novella Jean-Luc
Hardouin Jean-Benoit - Maitre de Conférences - HDR - Biostatistique - UFR de Pharmacie
Boyer François

Description

Nature : Articles dans une revue internationale
Thématique : Biostatistique et Mesures Subjectives en Santé
Rang : Rang B : publication porté par une autre équipe, mais entrant dans les thématiques de l'équipe avec un apport spécifique
Axe de recherche principal: Validation d'échelles

Dany A, Rapin A, Lavallart B, Saoüt V, Reveillère C, Bassez G, Tiffreau V, Péréon Y, Sacconi S, Eymard B, Dramé M, Jolly D, Novella JL, Hardouin JB, Boyer F (2017) The quality of life in genetic neuromuscular disease questionnaire: Rasch validation of the French version.. Muscle Nerve, 56(6): 1085-1091.

Abstract

Introduction: Slowly progressive, genetic neuromuscular diseases (gNMDs) often lead to important motor deficiencies and functional limitations. The Quality of Life in Genetic Neuromuscular Disease Questionnaire (QoL-gNMD) is a new health-related quality-of-life questionnaire developed for these patients. The purpose of the present study was to validate the French version of the QoL-gNMD and to calibrate its measurement system.

Methods: Both the QoL-gNMD and a validated generic questionnaire (WHOQOL-BREF) were administered to patients. Validation was performed using item response theory. The partial credit model (Rasch) was used to calibrate each domain.

Results: Three hundred fifteen adult patients were included. All 3 domains showed adequate psychometric properties (internal consistency: person separation index >0.77; repeatability: test-retest intraclass correlation coefficient >0.75, scalability coefficient >0.38) and fitted the partial credit model. The QoL-gNMD also demonstrated adequate concurrent validity with the WHOQOL-BREF.

Conclusion: The QoL-gNMD showed adequate psychometric properties and can be used in clinical settings. Although not anchor-based, the minimum detectable change tables help in interpreting score change.

Projet(s) ayant donné lieu à cette publication

QOL-NMD : Evaluation de la qualité de vie des personnes atteintes de maladies neuromusculaires : construction et validation d'une échelle

Publications ayant le même axe principal de recherche (Validation d'échelles)

Perrot B, Anthoine E, Hardouin JB (2018) Validscale : A Stata module to validate measurement scales. Stata Journal, 18(1): 29-50.
Barais M, Laporte C, Schuers M, Saint-Lary O, Frappé P, Dibao-Dina C, Darmaun D, Bouchez T, Gelly J (2017) Cross-sectional multicentre study on the cohort of all the French junior lecturers in general practice. Eur J Gen Pract, 24(1): 99-105.
Fossum P, Le Meur G, Couret C, Pechereau A, Hode F, Albert F, Anthoine E, Lebranchu P (2017) Validation of the French version of the health-related quality of life questionnaire for adult strabismus (AS-20). J Fr Ophtalmol, 40(9): 738-743.
Baayen C, Feuillet F, Clermidi P, Crétolle C, Sarnacki S, Podevin G, Hardouin JB (2017) Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults. Health and Quality of Life Outcomes, 15: 24.
Boutoleau-Bretonnière C, Evrard C, Hardouin JB, Rocher L, Charriau T, Etcharry-Bouyx F, Auriacombe M, Richard-Mornas A, Lebert F, Pasquier F, Sauvaget A, Bulteau S, Vercelletto M, Derkinderen P, Boutoleau-Bretonnière C, Thomas R (2015) DAPHNE: a new tool for diagnosis of behavioral variant of frontototemporal dementia. Dement Geriatr Cogn Dis Extra, 5(3): 503-516.
Dany A, Barbe C, Morrone I, Wolak A, Reveillère C, Hardouin JB, Dramé M, Sacconi S, Bassez G, Tiffreau V, Richard I, Gallais B, Jolly D, Novella JL, Boyer F (2015) Construction of a Quality of Life Questionnaire for Slowly Progressive Neuromuscular Disease. Quality of Life Research, 24(11): 2615–2623 .
Blanchin M, Dauchy S, Cano A, Brédart A, Aaronson N, Hardouin JB (2015) Validation of the French translation-adaptation of the Impact of Cancer version 2 (IOCv2) questionnaire on a breast cancer survivors population. Health and Quality of Life Outcomes, 13: 110.
Panouillères M, Anota A, Nguyen T, Brédart A, Bosset J, Monnier A, Mercier M, Hardouin JB (2014) Evaluation properties of the French version of the OUT-PATSAT35 satisfaction with care questionnaire according to classical and item response theory analyses. Quality of life Research, 23(7): 2089-2101.
Anthoine E, Coutherut J, Delmas C, Moret L (2014) Development and psychometric testing of a scale assessing the sharing of medical information and interprofessional communication: the CSI scale. BMC Health Service Research, 13: 14:126.
Moret L, Anthoine E, Aubert- Wastiaux H, Le Rhun M, Leux C, Mazereeuw-Hautier J, Stalder J, Barbarot S (2013) TOPICOP©: a new scale evaluating topical corticosteroid phobia among atopic dermatitis outpatients and their parents.. PLoS One, 8(10): e76493.
Clermidi P, Podevin G, Crétolle C, Sarnacki S, Hardouin JB (2013) The challenge of measuring quality of life for children with Hirschsprung's diseases or anorectal malformations. Journal of Pediatric Surgery, 48(10): 2118-2127.

Publications liées à l'axe principal de recherche (Validation d'échelles)